The Rare Action Network℠ (RAN) is the nation’s leading advocacy network working to improve the lives of the 30 million Americans living with a rare disease at the state level. RAN serves as a broad spectrum of stakeholders ranging from patients, to their families, caregivers, and friends; from researchers to industry; to physicians and academia. While working predominantly at the state level, the network will filter information up to NORD’s national federal policy team to help address issues of national concern.
In order to make meaningful change in the lives of rare disease patients and their families in the state of Minnesota, we need you! Become active with the Rare Action Network by joining and utilizing the resources available on this website to take action and create change.
Want to learn more about the Minnesota Rare Action Network and how you can get involved? Come out and meet your Minnesota State Ambassador at the Southdale Library from 7:00 pm to 8:30 pm! It is a great time to network with other advocates and discuss issues facing the Minnesota Rare Disease community.
Like the Minnesota Rare Action Network on Facebook: https://www.facebook.com/RANMN/
Please feel free to contact Erica Barnes (State Ambassador, Erica.Barnes@rareaction.org) or Kay Lewis (Community Outreach Liaison, Kay.Lewis@rareaction.org), with any questions.
When? Every third Thursday of the month, from 7-8:30 PM
Where? Southdale Library, 7001 York Avenue South Edina, MN 55435
Host? Erica Barnes (952) 457-6956
Find out more here: http://rareaction.org/resources-for-advocates/state-action-center/minnesota/